Improving tic services in England (INTEND) survey data
Publication Date
December 12, 2025
Creators
Description
The ImproviNg Tic services in EnglaND (INTEND) study explored current service provision for tics and Tourette syndrome in England by contacting NHS organisations. We also asked healthcare professionals working in children and young people’s services about their experience of assessing and treating tics and whether they felt they would benefit from more training in this area. We then worked with experts throughout England to develop a recommended care pathway for the referral, assessment and treatment of tics.
Responses from NHS organisations demonstrated that tic service provision was inconsistent and very limited across England. Only 12 service providers were identified as providing a full care pathway that offered both assessment and treatment, and 5 of these providers were located in London.
The national survey was completed by 184 healthcare professionals. They highlighted a lack of resources, including funding, training and national clinical guidelines for tics. Most survey respondents identified a need for further resources to support them with both assessing and treating tics, including training. FOI and national survey responses together emphasised that tic services need urgent improvement.
Experts rated 62 service features on their level of importance to include within a care pathway. Based on these ratings and a team workshop, a final 43 service features were approved to guide the design of the care pathway.
Our Patient and Public Involvement (PPI) panel consisting of ten parents/carers of young people with tics provided vital input throughout the study. They shared feedback on study findings, including how findings reflected their personal lived experiences. Their input on key aspects of the INTEND Pathway also ensured that its design suited the needs of young people with tics and their families.
Coverage (Temporal):
FOI requests: April 2023-March 2024.
Coverage (Spatial):
England
Collection dates:
FOI requests: August - Sept 2023 and April 2022-March 2023, Online survey: Dec 2023-July 2024
Associate publ. DOI
Subjects (MeSH)
Subjects
Subjects (JACS)
Subjects (LC)
Divisions
University of Nottingham, UK Campus::Faculty of Medicine and Health Sciences::School of Medicine
Data type
Survey
Grant Number
NIHR204897
Data collection method
Freedom of Information requests, online survey
Resource languages
English
Publisher
The University of Nottingham
Date Issued
December 12, 2025
Except where otherwise noted, this item's license is described as
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Name
INTEND National survey overview document.docx
Description
Word document summarising the items and variables included in the national survey of healthcare professionals
Size
182.04 KB
Format
Microsoft Word XML
Checksum (MD5)
5b1c2a8f56735f387b3d2a4768ccc558
Name
INTEND FOI2 Overview.docx
Description
Word document summarising the variables and data description for the second FOI request
Size
93.17 KB
Format
Microsoft Word XML
Checksum (MD5)
bd4f88045630f4b75e931f97891d3bfe